People with autism, their friends and families, carers, policymakers and researchers collaborate in seven project groups.
The project groups are dedicated to themes which:
- are important throughout the entire lifetime, such as risk and success factors, care networks, and genetic counselling
- deserve attention because they are related to times of transition in life, during which available knowledge is currently insufficiently applied, such as youth and over 55
- relate to complex problems and urgent requests for help where care and policy still require improvement, such as emergency clinical care and multiplex families.
The aim is to gain more insight into the risk and success factors affecting people with autism throughout their lifetimes. In 2018, the project groups will announce concrete products which can be implemented immediately within, for example, the care or care management of people with autism.
The following projects have been defined:
- Lifetime: what are the important risk and success factors throughout the lifetime?
- Care network: is a better quality-of-life possible with better organised care?
- From genetic laboratory to patient: knowledge sharing and joint decisions.
- Transitions in education: more knowledge & better handling.
- Successful development of independence within multiplex families: contributory factors.
- Dealing with clinical crises for people with autism: who, when, what treatment.
- Phases of transition: autism and the elderly. What can we do for them now?
Anticipated project result
The various projects have described their own project results, such as:
- Advice (regarding policy) in the form of fact sheets and protocols.
- Online tools with modules for knowledge sharing and accessible information for people with autism.
- A model for a sustainable collaborative network around young children with autism (school, CJG doctors and care and treatment practitioners).
- Insight into the effects of networks (among other things) and pilot interventions.
- Best-practice guidelines for the improvement of insight, treatment and support for people with autism.
The precise results will be formulated at a later stage.